Showing posts with label dementia. Show all posts
Showing posts with label dementia. Show all posts

Monday, March 19, 2018

The box: In Memoriam


My dad arrived in the mail today.

A box.  I had to sign for him. 

The postal carrier was sweet—told me to focus on happy memories—and then handed me the box. The body. My dad’s ashes. How have we come to such a place where the dead are mailed? I received a box of books at the same time. Didn’t have to sign for them. People are more important than presents, but not so important they can’t be boxed and shipped—moved from holding facility to mail truck with no one knowing or caring what’s in the box. That’s my dad. Be gentle with him. 

And yet no need. He’s not there. It’s a box. It’s full of ash. I haven’t opened it yet, but I’ve seen other “cremains.” He’ll look like fine sand from an Oregon beach, some bigger bits poking out of the dust. He won’t be wearing his NEVADA suspenders or his dorky little glasses case that hung from his belt loop on a carabiner for as long as I remember him. No teeny agenda book in his breast pocket. No mustache. No glasses. No wedding ring. All those things I collected long ago, too early to appreciate them—they were surrounded with the bitterness of losing him to dementia, but still having to steward his body through the end. 

That transition complete now, I am gifted with a box of dad, and a strange freedom to reframe the objects I associate with him, to see them in light of real loss. Now he’s really gone.  Now I can’t even hold his hand or kiss his head or sing him “Stardust” anymore... I could sing to the box. 

But he’s not there. He’s not in the box. He’s in my head and in my heart and in some of my movements and some of my words. He’s in my children and he’s in the wind. I felt him at Yellowstone, hiking, when I learned of his death. I took him with me through Yellowstone’s canyons and meadows, looking for wildlife while the light lasted.

He’s in my pictures; that is certain.  He wanted to be a photographer, but the closest thing the University of Alaska offered to a photography degree in 1949 was chemistry. He took some classes, then he followed different passions.  But he took pictures all his life. He once lost his camera on a trip to Canada, and some stranger found and returned it, shipping it from British Columbia to Nevada at his own cost. I have rarely seen dad so happy as when he opened that box. When I bought myself a camera in college and then returned it (I really couldn’t afford it; returning it was a very responsible, adult thing to do), he bought me a camera for my graduation. And a case. And two lenses. And four filters. He was proud that I liked taking pictures too. But it wasn’t my driving passion either, but something to document with, to create, to express how we see or at least acknowledge the appreciation that both of us have for the world. 

There are other boxes to go through: boxes of slides, thousands of slides of the pictures he took. Now that he’s gone, I can go through them, and I’ll find him again, in what he found important enough to photograph and how he chose to frame it. I’ll see the world through his eyes, and I’ll have questions for him that no one will be able to answer. But in the questioning, there will be commerce. In the looking, there will be contact. And as with every time we try to see the world through another pair of eyes, there will be love.

Monday, January 8, 2018

Wandering Back to Old English

I am teaching Old English for the first time in several years, and I’m so excited! It’s like revisiting an old friend. For a variety of reasons from the lows of a medical leave to the highs of a sabbatical, the survey of British literature has not fallen in my lap for… too long.

I thought for a while I might be an Anglo-Saxonist, which goes some way to saying how much I enjoyed the language and the culture of that Germanic, heroic, fatalistic poetry. It was the first dead language I studied, and I was entranced by the strangeness and the similarity to Modern English and American culture. Hwaet! Mead. Warrior-companions. All of that was awesome. I wrote my MA thesis on Beowulf and the Old Saxon Heliand.

Then I went on and discovered Chaucer, and my world shifted again, but part of my heart burns a candle for Beowulf and all his charming imperfections.

When I teach Beowulf, I build up to it. We look at the conventions of Old English poetry in small texts like “Caedmon’s Hymn,” “The Wanderer,” and “The Battle of Maldon,”, and then Beowulf brings them all together. Today, though, I’m stuck on the Wanderer.
“The Wanderer” is a brief poem, mostly a soliloquy, but framed by a narrator (lines added by a well-meaning monk? We will never know) who explains the speaker’s state of mind. He’s sad. He’s lonely. He longs for grace. He has lost his lord and kinsmen and finds himself alone in the world.

And this time, after a four year hiatus from Old English during which both my parents died, I read those words in a way I never imagined before. The Wanderer sounds like a man slipping in to dementia.

It’s not, of course. That’s me imposing a fragment of my life, or my father’s life, really, on the speaker. But I did not see it coming, and it rings this time through with that truth that works of literature change with us; as we age and our circumstances change, our experience of the text changes, because we are half of the equation—the reader.

The Wanderer gripes a bit. It’s usually called an elegy, but I entertain other genres, and this feels more like a complaint or a consolation poem, since he’s resigned to his fate at the end. He is frustrated by his circumstances and trying to get through by turning inward.

He has lost his relatives and his lord. Maybe there was a battle, and he is the sole survivor. Whatever the case, he has lost everyone. This is how my dad felt, as he saw people he couldn’t remember, when he could still recognize that he should know them. He began a slow descent in to exile—separated from everyone he loved.

The Wanderer learned “that silence is noble and sorrow/ Nothing speech can cure” (ll 13-14). Dad seemed to learn this too, withdrawing more and more in to his head, but not being able to articulate why. He seemed to have moments of calm when he was quiet, but got confused and flustered when he tried to sort things out. Hideous, debilitating cause aside, he would have made a good, laconic Viking.

I have read this poem twenty times. I know it’s not about dementia, and it’s not about me. It’s about the abject fear people feel in a culture plagued by cold and famine—a primitive, instinctual fear of being alone, not just because of loneliness, but because communities survive where individuals die.

But whenever we willingly enter the world of a poem or other text, it is in some ways about us. And this time, I was delighted to see it was about my dad. It was nice to see him.

I’ve just decided it’s a consolation poem.


(This translation is taken from Burton Raffel’s Poems and Prose from the Old English.)

Monday, October 31, 2016

While the Light Lasts

Dementia is a degenerative disease. It does not improve. One does not recover. The best we can hope for is to slow the current, as what was your life--your character, your habits, and your memories--slips over the falls at the end.  But this is not a post about water. It’s a post about light.

In the summer of 2007, my dad was admitted to the hospital for internal bleeding caused by the deadly combination of diabetes and alcoholism. When they tried to treat his alcoholism, they found he couldn’t remember the next day what the counselor had discussed with him previously. Rehab was deemed unnecessary on the grounds that his dementia made it fruitless. It was the first we knew of the advanced state of his dementia. Mom had not wanted people to know, and she had not realized how serious it was. Old men get forgetful, now, don’t they? He had about a two-hour memory window, but couldn’t remember what had happened before—a flashlight with a two-hour battery.

I started researching dementia. For him and for me.

Two years later, that window had narrowed considerably. When I moved him in to an assisted living facility closer to me, I took him some books. I asked him if he wanted to read. No, it’s too tiring. I read aloud “Casey at the Bat” and “The Cremation of Sam McGee.” They are long poems, but poems we both knew well—poems he had read to me many times over the years.  I thought he had five minutes in him, at least. He did not. He did not have a whole sentence in him. By the end of the sentence, he couldn’t remember what the beginning had said. He was confused, disheartened, frustrated, and tired. His mind was a matchlight that burned out almost immediately. I started wondering how long his light would last.

This is a question we’d considered in my youth while talking about photography. Photography is all about light—capturing light, manipulating light, diffusing light, redirecting light. When we went camping, we took pictures, and some of the best were taken in the ‘tweener times—the dawn and dusk hours where light was softer and often broken by shadows. This was a time when the color of flowers looked rich, not bleached, washed out by the midday sun. It was also the time of wildlife. 

Deer are most active during these hours, more mobile, on the lookout for food and water they dare not seek during the bright light. The shadows keep them safer. The shadows also give them a texture, a depth, and the pictures taken during those hours convey a coziness and intimacy that is not attainable in full sun or in the darkness that follows dusk. It’s important, then, to shoot precisely during that window—after the sun has set but before the darkness obscures your vision completely. We shoot not frantically, but with purpose, and with intent to make the most of a fleeting opportunity, to take the best pictures we can in the best circumstances. Had I known this would become so comforting a metaphor for life, I would have paid more attention during those moments.
 
Sitting in his room in his retirement community, reading Robert Service aloud, I longed for epigrams instead of ballads. I sang him songs. Short songs, never the second verse. I wanted to give him cozy, comfortable memories, but distilled. I learned to speak in images: I bought a new car; the granddaughter lost a tooth; the roses are blooming. I brought in books of buildings and bridges, so we could look at them together (he was an architect). We looked at one picture, pointed out a favorite feature, and then put the book away. When words and images are illuminated in flashes, lasting only a moment, you learn to winnow the world down to beautiful seconds. If your whole life is one moment, with no connective tissue to others, you want to make each moment beautiful.

This is why dementia patients need caregivers (apart from the obvious, practical reasons).  If someone is there, pointing out lovely things, life is lovely. If not, the odds that they’ll think of a lovely thing are long; they’re more likely to start and then become confused, as the darkness gathers in their mind. Those of us without dementia benefit from perspective; we see things in a panorama or a film, with scenes succeeding scenes. Our current scenes have a past, a trajectory we can see, and a future we can sometimes predict. And all this cycling through days and nights and dawns and dusks serves us best when it reminds us to take the best shots we can while the light lasts.